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Posts Tagged ‘ADHD’

Gratitude Sunday

May 15, 2011 1 comment

My heart is so full today. I cannot begin to express what this day means for me. So much of Tyler’s life is a struggle… for him as well as for his mama. To see this young man I grew from my own body coming into his own… to have members of my beloved community come to me and tell me they were honored to have been on the review panel when he had his interview…

Those of you on my Facebook know I’m reading Gregory Boyle’s book, Tattoos on the Heart. With as many excerpts as I’ve copied from my kindle, I don’t know how you could miss that tidbit. So in keeping with that theme, here’s another gem.

“When you fill my heart, my eyes overflow.” ~ An Algerian Trappist

Boyle, Gregory (2010). Tattoos on the Heart (Kindle Locations 377-378). Free Press. Kindle Edition.

http://www.facebook.com/v/2079595270848

Unitarian Universalists believe that all religions should and can be accepted. A Unitarian Universalist believes in equality for all religions and every race. Unitarian Universalists often believe that religion is a search for meaning. It is more of an openness to new experiences rather than a set of beliefs. Religions help us to realize that every piece of our lives is related to the others.

Some Unitarian Universalists often think of religion as a time consumer for Sunday. Some Unitarian Universalists think of religion as a way of life, a sacred search for meaning and understanding. Some Unitarian Universalists believe in God, some don’t. Some believe that the theory of God is used to bully other religions and some think that God is a force, a feeling that flows through us and connects us to one another. To seek God would be to seek yourself and your surroundings.

Ho Mitakuye Oyasin. This means, I am related to all things and all things are related to me. I don’t believe in God I believe in love and faith. No matter what the situation is I will stand on the side of love, which means I care for the equality of all living things.

Cyndi has a PSA for little & not so little boys…

October 5, 2010 1 comment

swords-samurai-swords-alloy-blade-a-classic Kid’s Crest Sparkle Fun toothpaste will NOT disguise the holes you put in the living room wall while playing with the samurai swords that belonged to your great grandfather.

Blue gel doesn’t turn white. It just stays blue, and stains the wall. It will also cause your mother to spew obscenities, after which you will get a lecture from your father that lasts a solid 45 minutes (and counting).

What? Already? Nuh uh!

August 9, 2010 2 comments

I don’t know that we are ready to go back to school, but as I type here comes the sun to announce that the day is here whether I like it or not.

No more ”sleepovers” in the living room or mommies bedroom… the girls barely spent a night in their bedroom all summer.  But last night it was back to business as usual, because school starts today.

It’s Halle’s first day of middle school… and she’ll be reunited with all her besties that have already started middle school… God help the teachers and administration, as they will surely need it with those four jockeying for the “Real Housewives” Tween Drama Queen title.

Daija starts third grade at elementary school by herself this year, but luckily her bestie from volleyball practice has enrolled there and will be riding the same bus. The after school program the kids have always gone to was cut so things will be a little different this year…

Tyler has been back in school for a week… an event that almost created an anxiety attack for me, but that he seems to be taking in stride. He’s been reunited with friends from way back in his days at MLK’s gifted magnate; one of the members from that terror squad is also in the Aerospace magnate. He seems to love his classes, we’re just going through the usual “trying to get back on track” adjustments the new school year always brings. This week I’ll be sending my usual “Hi, I’m Tyler’s mom” email to see how things are going and whether each teacher has his 504, and then providing them with a copy when (as usual) they do not.

LET THE WILD RUMPUS BEGIN!

my tribe

April 28, 2010 4 comments

So I have this new friend… her name is Maisha. She found my blog after I made the following comment on What Tami Said: Relationships 2.0: Are you my real friends or are you just virtual?.

November 5, 2009 7:56 PM
curlykidz said…
Absolutely real! Some of my closest friends are people I met online between 7 & 10 years ago. I live on the same block as one of them now, and one of us does morning carpool & the other afternoon carpool. Another flew from Philly to Phoenix to be with me IN THE DELIVERY ROOM when I gave birth to my youngest… it was the second time we’d ever met “in person”, but we talk almost every single day.

Virtual friendships can be very superficial, but that’s true of “real” friendships as well.

 I suspect the hook for her was Christie’s attendance at Daija’s labor & delivery, since Maisha is/was a childbirth educator before returning to school for her nursing certification (congrats again!). Maisha followed the link to my blog, where she noticed that Daija’s hair texture was very similar to her daughter’s, and gave the Naturally Curly method a try. Not too much later, I added the “contact form” so people could send messages directly to me without me having to publish my email address. Maisha was the first person I got a message from.

Aaah, the cosmic order of the internets.

We exchanged an email or two, but both of us being busy mamas, it didn’t go much further than that. Some weeks or months later, I connected with a member of my church on Facebook, and noticed THEY were friends. I figured this was a pretty good sign that Maisha wasn’t crazy and friended her, and the rest, as they say, is history. We arranged a playdate for the kids a couple months later, and they all got on like a house on fire, but especially our eldest kids, both middle school boys, both biracial, and both with learning differences.

I got a phone call yesterday from Christie… who, of all my “virtual” friends, is the hardest to keep up with. So much so that I answered the phone with,

You NEVER call me. What’s going on?

Thankfully, there was no crisis… it was just a “it’s been too long since we caught up” call. I was telling her about Maisha, seeing as how most of my social calendar revolves around her family anymore, and told her how we were going to be bringing Maisha into “the tribe.” Which was a little ironic, as I reread Tami’s blog this morning…

When I began writing online about the things that are most important to me, I soon found a small group of cyber-friends who inspire me, who write things that seem like they tumbled from my own mind, who share some of my beliefs, opinions and obsessions and challenge others, who crack my shit up on the regular. I found my tribe–folks who speak my language–online.

This entry is in partly background for a couple blogs that are still in draft, and partly a marvel at serendipity. I have some rich and beautiful friendships that have either started online, or that began in person and were able to continue after someone moved away… but the one complaint that these friends and I share is that for most of us, our friendships aren’t really able to include our families. So, this is mostly a big, big thank you to Tami Winfrey… you have no idea what a gift you gave Maisha and I, or what a blessing that gift has been for our children.

Our Journey: ADHD & Gifted « curlykidz

November 12, 2009 Leave a comment

There’s still more here and there, but I think I have the bulk of the “milestones” transferred.

Archive for the ‘ADHD & Gifted’ Category

via ADHD & Gifted « curlykidz.

ADHD tools: focus booster

November 6, 2009 1 comment

I downloaded this on my work PC this afternoon, and it was really pretty helpful. I’ve gotten to the point where I tune out outlook reminders, and even reminders from mycell phone  palm pilot pocket pc blackberry. I was really surprised by how much I got done in the 25 minutes I used it… not allowing myself to be distracted by new incoming mail or other tasks and just focusing on this ONE folder in my mailbox… although I couldn’t exactly ignore the Office Communicator message that came in from a colleague in another department… :) I downloaded it on my laptop at home in hopes of managing my blogging time better (I get lost on google when I do research & fact checking)… it takes me WAY too long to compose!!!

A free application to help you get what you need done. Pronto!

 focus booster is a simple and elegant application designed to help you eliminate the anxiety of time and enhance your focus and concentration.

focus booster has been designed based on the principles of the Pomodoro Technique and features:

  • a sleek and unobtrusive design
  • changes color as time goes by for quick, peripheral updates
  • alarm/buzzer sounds for completed sessions
  • customizeable time and sound settings
  • session counter

It’s quick to start up and works efficiently in the background without consuming computer resources, or your focus.

Pomodoro in your browser!

Don’t feel like installing our desktop version? Away from your computer? Use our online version, focus booster live!

Coming soon!

  • break counter to keep you rollin’ through the sessions (v1.0)
  • record your sessions with notes and rating
  • online community to track and share your sessions

What is the Pomodoro Technique?

the Pomodoro Technique is a time management method created by Francesco Cirillo. It can be used for any kind of task and enables you to view time as a valuable ally in acomplishing what you want to do.

focus booster is a digital pomodoro timer to help you implement the Pomodoro Technique as quickly and efficiently as possible. Use it with ease and no fuss to focus on the things that are important, ignoring the distractions.

#ADHD (& Gifted) « @curlykidz

November 5, 2009 Leave a comment

OK, I’m busily transferring more of those blog archives from other locations, and have been focusing on some from about two and a half years ago, when my oldest hit a dark, scary, and unfortunately, very common place for kids who are exceptional learners: anxiety, depression, and thougths of suicide.

Here’s the link to the ADHD/Gifted archives:

ADHD & Gifted « curlykidz.

Me and My Shadow: Life with ADHD

November 5, 2009 6 comments

A Hollywood writer and producer, who wrestled with ADD since childhood, spills it all: what he’s learned about himself, the unaccepting world, and his ADD brethren.

 
Former Hollywood writer Frank South describes his late diagnosis with attention deficit disorder Ed Krieger  

One lesson I’ve learned: We ADHD folks are everywhere.

We’re the creative vice-president in the cubicle who, while you’re yelling at us for missing another deadline, comes up with the intuitive leap that saves a whole product line. We’re the spouse whose highly sensitive antennae pick up a vibe from our 13-year-old daughter that she needs to talk. So we sit down with her for a half-hour as she pours out her problems, leaving you waiting at the car place, after promising you we wouldn’t be late.

We’re the 20-something working at the fast-food drive-through who forgot to remove the pickle that you’re allergic to from the Double cheeseburger. We feel terrible—I swear we’re not doing any of this on purpose—but we also find it so freaky funny that we’ll put the whole mess in a stand-up routine that will knock you out laughing when you see it on HBO in two years.

We’re the fifth-grader who makes you wish you had gone into the forestry service and been stationed out in the wilderness rather than teaching us. But then one day we not only hand in our homework—finally—but we also hand in a startling pastel-and-pencil drawing of you that captures the light coming across your desk from the window exactly the way it does every afternoon. You realize that we weren’t staring out the window, we were staring at the light coming in.

We are not stupid or crazy. Well, I could be fairly labeled crazy-ish, due primarily to my off-the-charts ADHD, hypomania, alcoholism, and some depressive tendencies. When you get over being furious at the things we did or didn’t do, don’t waste time feeling sorry for us. We’re working on being less forgetful and accidentally destructive. Even though we talk with shrinks and coaches, work on our social and organizational skills, and take our meds, our core ADHD selves are not going to change into anything normal. Guess what? I don’t think you want us to. That’s because we remind you of that part of you that doesn’t fit in, that’s dying to open the dark door down the hall. Read more…

Pondering Serendipity

May 31, 2006 Leave a comment

I’ve had some personally surreal moments over the last few months.  Normally, this is the kind of post I would restrict to my preferred list… you know, the people who know me intimately and to whom I can share the deep dark or completely nutty things and know that even if they judge me for it, they’ll still love me anyway.  But this one, even though it falls into both categories, I think I’ll just leave out there. It’s going to contain a lot of mess and may not make a damn bit of sense to anyone who doesn’t know me ‘like that’ but on the other hand, maybe someone will see something in it that they need.  

In March, Tyler had an appointment with a leading developmental pediatrician in the field of ADHD, at a Child Study Center.  We were to review some screenings for depression and anxiety.  Tyler was showing some significant signs of both.  As the PNP was asking questions to Tyler at the end of the appointment to get an idea of how often he was feeling depressed/sad and anxious/worried, she asked him if he ever thought about suicide.  Tyler had, and of greater concern, when she asked him how he’d do it, Tyler had a suicide plan.  Read more…

I think we have some balance again

March 28, 2006 Leave a comment

March 28, 2006 – Tuesday 9:30 PM 

Current mood:  lethargic  

Thanks so much for your words of encouragement, here and in your emails. There is so much going on all at once that I feel dizzy. And tired. Friday night I spoke with Tyler about what is leading up to his feelings, which was a terribly scary thing for me.  K’s name came up often, as did a couple others I’ve heard before.  Tyler is also troubled about his friendship with A, which seems to have hit the rocks.  I asked Tyler specific questions about his feelings, and he indicated that he thinks the other kids would stop acting the way they do if he were to kill himself.  I asked him if he just wanted to teach them a lesson, or if he really did not want to live, and he said that he wants them to learn a lesson, but he also does not want to live the way he’s been living.  I asked too, if he feels like he wants to kill himself when he’s in trouble at home or if he feels like we (his family) also need a lesson… Read more…

on the dark side of ADHD

March 27, 2006 Leave a comment

I try not to ‘relive’ my life through my children.  I make a conscious effort to try and NOT transfer my own emotions and experiences onto Tyler’s life, even while I try and tap into those same emotions and experiences so that I can empathize with what he’s going through, and help him.  I’ve noticed I keep saying to myself, things like… we’re going to be OK.  I suddenly feel like I am reliving my childhood.  I was not a stranger to ’dark’ fantasies… wouldn’t everyone just feel terrible about the way they’d treated me, if I were dead… whether in some horrible accident, while heroically saving someone from a house fire, or by taking my own life. Read more…

Energy/Prayer Request…

March 23, 2006 2 comments

It’s hard for me to do this, because I know most of you are working hard to overcome your own painful situations, but Tyler really needs your good stuff right now… He had an appointment today at St. Luke’s Child Study Center. I wish I had it in me to go into detail… but I don’t so I’ll just have to beg for your patience until I find my equilibrium again.

Please, the next time you talk to God, mention my son.

ADHD Perspective: my name is Wild Child… – 2006

March 6, 2006 3 comments

This is a personal narrative from my son, describing his ADHD.

March 6, 2006 – Monday 10:35 PM

  My name is Wild Child and I am nine years old.  I go to [ABC School].  I am in 4th grade and I am in Mr. Homeroom’s classroom and I have Mrs. Gifted for reading.  I am gifted and I have ADHD.  My ADHD makes it really hard for me to remember things and pay attention.  It also makes it hard for me to sit still.  I take medicine for my ADHD.  When I take my medicine, I feel like regular me, but kinda tired and not so excited.  When I don’t take my medicine, I feel really excited about everything, and I feel jumpy and I want to move a lot and stuff like that.  I like taking my medicine.  I feel like I’m getting a whole lot better grades than I did when I was in second grade and I didn’t know I had ADHD; it helps me sit still in class and pay attention a little better. Sometimes when my teacher is giving directions, I look at him while he’s talking but then my eyes start drifting off to something else and then my brain starts thinking about that thing.  One day while we were talking about math, Mr. Homeroom was teaching us about the problems for that day, and I looked at one of the math problems, a multiplication problem, and I started staring.  Then my brain started reading the numbers backwards and thinking of different multiplication problems and I wasn’t paying attention anymore.  I didn’t figure out the answer, so when Mr. Homeroom called me I didn’t know the answer.  After that Mr. Homeroom told me to go back to the thinking table.  I think I was in trouble for not paying attention. Read more…

Just think of me as the white rabbit (Section 504 Update) – 2006

March 1, 2006 Leave a comment

Just think of me as the white rabbit (Section 504 Update) – CURLYGURL’s MySpace Blog | Cyndi–s Jewels

I’m up half the night at home researching for this and then at work I’m furtively printing documentation like mad in between tasks… I’m so behind in everything… work, housework, friends… ya know… life.

Aside from my ‘independant research’ I made a few phone calls that kinda bolstered my confidence.  On Monday I spent nearly 45 minutes with the director of gifted services at the AZ Dept of Ed, and yesterday I about 30 minutes on the phone with a staff attorney from the US Dept of Ed’s Office of Civil Rights… I’ll have to post details of those conversations this weekend.

I finally confirmed the date of the next CST (child study team)/504 Accommodations meeting on Tuesday, 3/8.  Tyler’s teacher, the school’s gifted teacher, the school’s SpEd coordinator, and the District’s 504 coordinator will all be in attendance… not sure about the school Psychologist.  I called to follow up with Ms. SpEd, and discovered she’d forgotten all about him (eyes roll outta my head).  That was the weightier of the reasons we decided to continue the meeting, so that he could attend.  She’s sweet and seems well intentioned, but either she’s overworked or she’s on the ditzy side.

So my task between now and then is to sort through the two or three reams of paper I’m hefting around with me everywhere I go, and figure out how much of it I want to carry into this meeting.  I have about twice as much paperwork as I had when I went to the last meeting.  Mr. Teacher made a wow comment, and Ms. SpEd looked a little freaked out when I plopped that bulging 2 in binder on the conference table.  I also need to get some records from Tyler’s initial diagnosis/comments from that psychologist.  I’m trying to get some records out of the old school district and I am so hot with them right now… they only have scores for Tyler’s 2nd grade SAT-9′s.  No SAT-9 scores for 3rd grade, and no AIMS scores.  For those of you in AZ… you know the AIMS.  IT’S FREAKING REQUIRED FOR A CHILD TO PASS IT TO GRADUATE FROM 3RD, 8TH, AND 12TH GRADES and they have no record of it.

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Tyler’s 504 (long one)….

February 22, 2006 Leave a comment

With Tyler’s report card, I also got a letter from the school requesting my permission to formally evaluate him for gifted services.  Can’t remember if I posted about this at the time, but one of my reservations about sending the kids to this other district is that their guidelines for gifted services are exactly as mandated by state law… a score on an approved test of 97th percentile or higher.  Our home district, because of the socioeconomic factors and high ESL (english as a second language) population, offered gifted services to students with lower scores, but I can’t remember what exactly the cut off was.  This isn’t a problem for Halle, she scored ”98 plus” on the Raven’s, but Tyler’s highest scores were 95th & 96th e (on the WISC III), he is below the cut off for gifted services in the Kyrene district.  Of further concern to me, is that Kyrene’s initial screening test is the CoGat,which both the kids have taken and neither did particularly well on.  Many of these ‘IQ’ tests are commonly known in academic communities to be racially, culturally, and economically biased.  White suburban kids tend to do quite well on them… and so do white midwestern kids where these tests are normed.  Brown inner city kids, not so much. And I guess it goes without saying that the CoGat isn’t the test of choice for children with learning disabilities of any kind, including ADHD.  I spoke with someone in gifted services at the district, as well as with the gifted teacher at the school, before I enrolled them and was comfortable with the discussion, and it was agreed by all that we’d address whether Tyler needed the gifted curriculum after we saw how he did on the intake evaluations and in the regular classroom, since it’s more academically advanced than the one he was coming from.  He was placed in the gifted reading class as a guest student the first day after his initial reading evaluation showed he was reading at an 8th grade level, and he was placed in the highest math track in his regular classroom (he missed an entire quarter on division while he was at the f-ing charter school reviewing 2 and 3 digit addition ).

So I gave permission for him to be formally evaluated, but had some reservations because I anticipated he would be given the CoGat.  Next night I find out that Tyler is being tested in a group setting, and had not asked for a study corral, which is one of this 504 accomodations.  Now, Tyler is the first ADHD/504 student his gifted teacher has had, so I figure it’s an oversight.  I get in touch with her to express my concerns and there’s a flurry at the school because apparently, Roosevelt didn’t include his 504 when they forwarded his records.  I should have known.  However, Lisa indicates that Tyler’s verbal comprehension score (95th e) on the WISC, coupled with the fact that he does have a condition that impacts his performance on standardized tests, may be sufficient to formally qualify him for gifted services in reading, but they will need to qualify him with another test in order for him to go into the gifted math class. So we tentatively scheduled the testing to reconvene after Tyler’s teacher, the special resource teacher who handles special ed (aka SPED), and myself meet and develop a new 504.  Because the 504 I had to go to the RSD office to get is expired anyway (they have to be redone each year).  In the meantime, I’m told by Tyler’s teacher that Tyler is not allowed to have accomodations during a gifted evaluation, per the SPED teacher, per somone at KSD.

You can imagine my response.  I’ve read Section 504, thank you very much, and my understanding is this… congress guarantees my son reasonable accomodations because he has a disability that impacts his learning, and to deny him those accomodations would be considered discrimination against a student protected by the Individuals with Disabilities Education Act.  So basically, someone is telling me that Kyrene’s standard policy for access to gifted services discriminates against students with disabilities.

I don’t think that’s actually the intention… gifted students are a small percentage of the student population, as is the percentage of students who qualify for 504 plans.  The percentage of ‘twice exceptional’ students like Tyler, who are both gifted and learning disabled, is even smaller.  It seems that Tyler may be the first 2E student any of the staff I’ve dealt with thus far have ever encountered.  And everyone truly seems to have the best of intentions where Tyler is concerned, so thankfully I’ve been able to approach this in a positive and collaborative manner.

So we had the 504 meeting, and really expanded on what had been there before to address some issues I see starting to crop up (there’s a lot more writing this year, which wasn’t an issue last year) and I was really happy with the classroom and homework accomodations we came up with, some suggested by Tyler’s regular classroom teacher & the SpEd coordinator, which I wouldn’t even have asked for.  I’ll share more of that when it’s final though.  We decided that we’d really need to meet again to finalize it since we were an hour into the meeting on a Friday afternoon, and Ms. Sped asked if I had any other questions.  I asked Mr. 4th Grade about Tyler’s math performance.  I wanted to know if he felt Tyler needed the additional challenge of the gifted math curriculum, or was he just keeping up where he was.  He indicated that when he breaks the kids up into skill groups in his classroom, he groups Tyler with the kids who are in the gifted math class and that he felt Tyler could definitely handle it.

So then I dive into the whole ‘accomodations’ thing and explain that not only for Tyler, but for the ‘greater good’ I want clarification on the district policy as it was explained to me… to the point that I want to know what this policy is based on.  I explain my understanding of 504, and that based on my understanding, their policy violates federal law… and if that’s not the case, and there is some obscure law I don’t know about that says disabled students are not entitled to protection under 504 for gifted services (which I can’t imagine, since gifted services fall under special ed in AZ), then I want to know chapter and verse what that law is and where I can find it.

We’ll be having a Child Study Team meeting to finalize the 504 plan.  Ms. Sped was very candid that my points were certainly valid,but unfortunately beyond her expertise.  She volunteered to make sure that both the School Psychologist and the District’s Director of SpEd are in attendance at our next meeting so that they can address the issue in detail.

originally posted Tyler’s 504 (long one)…. – CURLYGURL’s MySpace Blog | Cyndi–s Jewels

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